Genetics appointment
Today we went for the genetics appointment and
blood drawing. They had decided to do a selective
testing series instead of a full gene mapping.
They decided to test for terminal diseases only
in this testing series.
16th birthday
Orthopedics
We went to
orthopedic’s at Children's Memorial Chicago today
for the hospitalization follow-up appointment. We
waited 3 hours to get into an exam room and then
waited another 30 minutes in there just to hear
the doctor say “there's no treatment available
for you” oh gee thanks, I already thought of that
a long time before you did.
More X-Rays to follow in the future probably.



