On friday February 29th we went to the hospital at 6:00 AM like the pre-operative scheduling desk told us to the day before. Upon arrival we had to wait about five minutes before we were taken to admitting, the only reason we had to wait for admitting was because the surgeon Dr. Loeff was not going to be releasing me same day due to my neurological condition and immunodeficiency and due to my scoliosis they would have to do the surgery open, not endoscopically. After going through admissions and getting ID bands we went into the POCU (Pre-Operative Care Unit) where mom and dad helped me get changed into hospital clothes and then the nurse came in and took initial vitals readings. After that the anesthesia team and surgeon came in to do a final discussion on everything. We explained to anesthesia that I have breathing problems and take a long time to come out of anesthesia. After that mom and dad were given my surgical ID number that they could track my surgical progress on special plasma screens on tannoy just like at the airport. Around 8:30 I was taken to the operating room and they began with N2O (Nitrous Oxide) breathing as I had instructed them to start this way before insertion of the IV line with the induction agent and anesthesia, after the IV line was placed and the flow was started I was out after about a minute. I woke up in the PACU (Post-Anesthesia Care Unit) After about 30 minutes i was taken up to my inpatient room. On Monday they began my first tube feedings and over the next two days they slowly increased the rate of infusion till I hit 90 cc's per hour. on Wednesday afternoon they called the same company Quality Medical Equipment that I got my powerchair from. They ordered a infusion pump and supplies for same day delivery. We left the hospital at 3:00 PM and got home quickly after stopping at the pharmacy. Around 7:00 PM they delivered the pump and helped us get everything set up to start my first feeding at home at 8:00 PM. Me and mom were pretty quick as i could still do some of the work at the G-Tube end. I will get the photos of the home infusion equipment tomorrow.

Click the picture above for photos.